What’s it like to be on Methotrexate? Eight Patients Share their Stories
People with rheumatoid arthritis frequently are put on the prescription medication Methotrexate. Aashi Bhimani of …
source
Website dedicated to first-time mothers
People with rheumatoid arthritis frequently are put on the prescription medication Methotrexate. Aashi Bhimani of …
source
Living in Canada, took a long time to get my diagnosis of rheumatoid arthritis. Since then I’ve been prescribed many medications. Methotrexate was one of the first. After only 2 weeks, & the first blood tests, I was taken off it immediately. My rheumatologist tried me on it a couple more times with the same results. Tried many other medications, & turned out the only ones I could take was hydroxychloroquine & Sulfasalazine. They never controlled my flares or the progress of the disease at all.
This video made feel that I am not alone. As a younger person (30s) I often feel like no one in my peer group is all achey and hobbling around like an old lady. I actually take Methotrexate for Lupus but I also have arthritis.
I started methotrexate last month but my rheumatologist doctor also prescribed me folic acid with it.
I feel suppressed like I am on reserve energy most of the time. I used to be very, very active and busy on multiple projects. My story began with an electrical burn, a sars rna booster shot which I didn't expect until recently, and the decision of the ER nurses to treat my burns like psoriasis. I have no inflammation in my joints but it does settle in other places I have to bandage. It is not something I wanted to talk about if I were to go on social media but I was never afraid to face the life I had to live as awfully difficult and life threatening as it became for me when it spread to my lungs. Methotrexate helped me breathe again but my voice isn't there like it was on many days. Lots of water to keep dry mouth and headaches away. I was 29 when my legs stopped working with me properly. I could not walk by my thirtieth birthday. Still managing what I can over a decade later. Still looking for better doctors as I am constantly referred back to dermatology who only know the skin and nothing about the inflammation. I did see a rheumatologist but they are aware the inflammation isn't in my joints so it's not RA.
I was diagnosed with RA in 2000 (Australia) my Rheumatologist tried a few different medications Celebrex, Injections, pain killer's & a few others for about 2 years, then I started on Methotrexate in about 2002, jump forward to 2023 & all that time I was taking Methotrexate 20 mg, 2 tablets once a week & Folic Acid 5 mg 2 tables a week. I had to stop taking it as it was giving me Cirrhosis of the Liver (I do not drink & haven't for over 20 yrs). Since stopping & watching my diet they think that my Liver will improve. I have been taking Hydroxychloroquine (Plaquenil) 200mg 2 tablets every day for the past 6 months, my RA seems to be manageable at the moment but I do need a pain killer (Palexia) at least twice a week. My ESR's have stabilized to a ok level. I do not recommend Methotrexate long term, there are a lot of new drugs out over the past few years, talk to your Dr & do a little research of your own eg: Mayo Clinic, John Hopkins, Youtube is great also for feedback. Watch out for side effects of any drugs you take & always consult your Rheumatologist with any worries or questions. Good luck to all who are suffering likewise from this wretched infliction & try not to surrender to it, words of wisdom from my Dr is " Use it or loose it & yep he is right".
im in my thirties and are about to take this for psorasis… hoping it can give me some relief
It would have been nice if Paulina would have described how she felt that first morning. If it was more than joint pain.
Paracetamol does nothing for pain for me.
In small doses MTX can cause cancer?!!!
❤ the video. DEFINITELY helps in my decision making of getting started with methotrexate. Thank you.
Has anyone here tried the Paddison program
Thank you for the inclusion about grieving your old life. So important and a huge factor. ❤️
Ali I am 83 and have RA since my 20s .I just wanted to tell you that early on I had RA in my jaw so I couldn`t chew.Been on just about every drug including biologics.But I do want to tell you that I have gone into remission sometimes for years.Hope that encourages you.
Considering Methotrexate or Ciclosporin but not for RA, I have psoriasis. My wife has RA but never been offered this drug.
Thank you for the vid❤. Started methotrexate a few days ago. Been on hcq and azathioprine for over a year but my symptioms have not really improved. Cpk always above 20k……placing alot of hope on the metho! Appreciating the reviews
Such a supportive forum! I was diagnosed 1 year ago with psoriatic arthritis. I tried methotrexate pills first but couldn't tolerate the nausea. I switched to the injection and it's much better. Feeling grateful for this information supportive of methotrexate as my dermatologist questioned it.
Thank you all so much for sharing. I am 64 years old and been diagnosed with osteoarthritis. About 2 months ago I started Methotrexate for pain that I especially feel in my hip. The medication doesn't take all the pain away but at least I can function and do my daily tasks. I have an appointment with a surgeon in a couple of weeks to discuss surgery. I really don't want to do that!
So glad to find this channel today. Living with RA since i was 12 years old and im 26 now. Been on HCQS all these years but the disease progression continued so my doctor recommended methotrexate. Will be taking the first tablet today 15 mg per week for 4 months to see what works out or not.
Had the 1st tablet today and was tired the whole day. Kind of feeling stomach burn? Is it like common?
I’ve avoided methotrexate for so long. I started with Biologics, but each became less effective. Lost insurance and went back to Sulfasalizine , and rheumatologist wants me to also take methotrexate. When I was first diagnosed with Ankylosing spondylitis my then rheumatologist prescribed methotrexate, but I never took it. Guess I need to give in, as I also refuse to take JAK inhibitors as the other option.
Thank you all for sharing your experiences
I was offered Methotrexate pills in the uk, which I didn’t want to take because of the side effects and the fact that I have stomach issues. I went for a second opinion while I was in Italy, and I was told that they don’t use pills in Italy, apparently the injectable form is also more effective than the pill forms, as it bypasses your stomach. As soon as I came back, I asked for the injectable form, and I’m due to start injections next week.
What the hell, it took them two months to put me on Methotrexate after I was diagnosed. How do these people get on it the same day they are diagnosed.
Methotrexate sucks to be honest, but I have arthritis in my hips and can hardly walk, so hopefully it's worth the trade.
Thank you for this video. I'm a52 Yr old guy that that started getting joint pains and swelling 2 plus years ago. 6 weeks ago they found I have RA and immediately put me on 20mg methetrexate. So I'm new and still getting my head around the disease and the side effcts
Waiting for my diagnosis with psoriatic arthritis, I did, and still do, all of the natural remedies. I have irreversible damage, even with the healthy diet and remedies. I am glad the med will prevent further damage so I will be able to walk and use my remaining limbs into the future, while the healthy remedies prevent the meds from causing damage.
Wow, what a great informative conversation. Listened to the whole thing! And signed up. I was diagnosed with Psoriatic Arthritis and got one injection on the spot. Still weighing Injections vs Diet ways!!! im so stubbed.
I might have vasculitis
I am about to start. Scleroderma DX
This video is great! I too have been diagnosed with RA. I'm on pills but my doctor says the next step will be Methotrexate. This is very helpful. I'm so surprised to see that so many younger people have this as well. I pray everyone gets well soon.
I'm interested in the CBD data or any symptom-tracking sheets that can be shared. I'd like to try this for myself as I am struggling with severe fatigue, brain fog, and slight depression. Thanks!
Thank you for this video! I've been on Methotrexate for 1.5 years. I know I would not be functioning at all if not for this medication. But I still get flares here and there. I operate cameras and computers for a living, so when work gets super busy and I have a flare, I run to my doc for a steroid shot. So she increased my dose 5 weeks ago to 20 mg per week. My joints were 100% until yesterday. My thumb joint is killing me. The exhaustion from the meds is a whole other thing. But do you guys still get flares, even though this med works for you? I feel so defeated.